Father fights to find cure for his son’s cancer

Father fights to find cure for his son’s cancer

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Frederico Goldsztein was conscionable 9 years aged erstwhile he was first diagnosed pinch a life-altering encephalon tumor called Medulloblastoma, nan astir communal encephalon cancer for children.

Frederico, now 17, was surviving a patient life pinch his family successful Brazil. He loved schoolhouse and loved to read. His father, Fernando Goldsztein said he has publication each Agatha Christie novel. Then came Frederico’s diagnosis.

"It's simply, nan worst point that that, that a begetter aliases mother tin hear," Fernando told Fox News. 

"It's very sad to spot a kid suffering from cancer, peculiarly because they person nan full life up of them."

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But location is now a spot of dream for nan 500 families a twelvemonth whose children person been diagnosed pinch this shape of encephalon tumor: a imaginable breakthrough acknowledgment to nan fundraising efforts of a wished begetter and nan doctors astatine Children’s National Medical Center successful Washington D.C. Fernando, a crab subsister himself, travelled from Brazil to nan US to find a breakthrough cure for his boy and a measurement to minimize nan encephalon harm and broadside effects caused by treating this deadly shape of encephalon cancer. 

"Technology and medicine person evolved tremendously successful nan past decades, decades, but unluckily not for kids pinch encephalon tumors," Fernando said. 

Many of nan patients relapse. That's what happened to his boy Frederico.

  • Frederico Goldsztein pinch his younger relative together successful a photo

    (Courtesy of Fernando Goldsztein)

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    (Courtesy of Fernando Goldsztein)

  • Father Frederico and boy Fernando sojourn cherry blossom trees. (Courtesy of Fernando Goldsztein)

When he relapsed successful 2019, Fernando teamed up pinch a starring children's encephalon tumor master successful nan U.S. and nan Medulloblastoma Initiative was born.

"We put together what we thought was a dream squad of nan champion investigators astir nan world to attraction specifically connected 1 shape of Medulloblastoma," explained Dr. Roger Packer, nan Director of nan Brain Tumor Program astatine Children’s National Medical Center successful Washington D.C.

  • (Courtesy of Fernando Goldsztein)

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    (Courtesy of Fernando Goldsztein)

  • (Courtesy of Fernando Goldsztein)

"Fernando fundamentally asked maine aliases challenged me, could we travel up pinch a different attack to effort to create amended therapies quicker? And he knew very good nan measurement that medicine worked. It sometimes took betwixt 10 and 15 years to spell from a find to a caller treatment, to proving that nan curen is better."

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Medulloblastoma is nan astir communal shape of encephalon crab successful children accounting for 20% of each puerility encephalon tumors. 500 caller cases are diagnosed successful nan U.S. each year. The existent curen developed successful nan 1980's, leaves kids pinch lifelong cognitive and developmental problems.

  • (Courtesy of Fernando Goldsztein)

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    (Courtesy of Fernando Goldsztein)

  • (Courtesy of Fernando Goldsztein)

Now they are connected nan verge of 2 FDA approved treatments that could consequence successful a cure and less broadside effects for children facing treatment: 1 which changes nan immunology of nan tumor, utilizing vaccines for illustration the mRNA technology utilized to create nan COVID vaccine.

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"We dream they'll beryllium approved soon. And wrong that, two, 2 and a half windows should person caller therapies for children pinch a subset of Medulloblastoma, which again, should beryllium generalizable successful nan very adjacent early to different encephalon tumors," Dr. Packer explained. 

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Every dollar raised contributes to nan technological investigation down a cure.

"We cognize that we person a agelong measurement up of us, and we still request much support and much group helping america to thief each of these kids, Fernando said. "They cognize that their kids person nary options. So they inquire maine to thief them. I'm not a doctor, I cannot thief them. Some of them I nonstop to Doctor Packer. They spot our inaugural arsenic their only hope."

Liz Friden is simply a Pentagon shaper based successful Washington, D.C.

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